Living with Metastatic BC
Education
Support
Caregivers & Families
Education
Support
Living with
Metastatic Breast Cancer
Resources & Support
So You Can Keep Living Life!
Created in partnership with Abigail Johnston and the Grieving Together Project. In honor of the late Alyson Tischler.
Living With Metastatic Breast Cancer
Living with metastatic breast cancer (MBC) requires unique, tailored approaches that often differ from those diagnosed at an earlier stage breast cancer. Survivingbreastcancer.org is committed to addressing the gaps between early and advance stage breast cancer to improve education, support, and resources for our MBC community.
Metastatic Breast Cancer Terms and Definitions
Metastatic breast cancer is also referred to as Stage IV, or advanced (stage) breast cancer. It is when the cancer cells have spread through the lymphatic system or blood stream to other parts of the body such as the bones, brains, lungs, or liver.
De Novo is a term that refers to a metastatic diagnosis at the time of initial diagnosis and staging. A de novo metastatic breast cancer diagnosis accounts for approximately 6-10% of breast cancer diagnoses.
Distant Recurrence is a term that is used when the cancer has returned after an initial diagnosis and treatment and has spread beyond the breast to other parts of the body. The average time from diagnosis to distant recurrence is approximately 5 years, though it can vary widely.
Living Well With Metastatic Breast Cancer
Women (and men) diagnosed with MBC have unique needs and concerns and it is important to acknowledge the emotional, mental, and physical aspects associated with such diagnoses.
Living well is more than looking after one's physical self. It entails taking care of the emotional self, time management as priorities may shift, balancing quality of life with treatments and finding support and information when you need it. This Resource Guide will continually be updated with information and we're always happy to hear your feedback on what may serve you best!
Resources & Toolkits
How To Be Helpful When A Loved One Is Sick
Parenting Toolkit
Download Resources
End of Life Logistics, Advanced Directives, and Estate Planning Toolkit
Palliative and Hospice Care Toolkit
MBC Sunday Series
Every other Sunday we host free webinars for our MBC community where we invite guest speakers and panelists to address the most pressing questions. Topics range from grief support, speaking to your family about your diagnosis and telling your children, to advances in treatments, legal estate planning and more.
Get Online Support
Connecting with others who have similar experiences helps us share our stories and heal. There are a variety of ways to meet those who are living with MBC through our virtual and online communities and private groups.
(It's Free)
Thursday Night Thrivers Meetup
Every Thursday at 7pm ET, those diagnosed with breast cancer meet up for our "no-agenda" zoom hang out. Our meetups are unique because they are hosted by the community, for the community. This is peer-to-peer support at it's finest and not your average support group. There is a place and time for social workers and medical professionals but at our Thursday Night Thrivers Meetups, it is come as you are to meet up and hang out with like minded friends!
All stages are welcomed. On the third Thursday of each month, we will also host a breakout room specifically for MBC.
- Multiple DatesDec 29, 2022, 7:00 PM – 8:00 PM ESTVirtualThis is your weekly breast cancer support group! It's a welcoming and inviting virtual space where you can come to meet others, ask questions, or just listen in. Our session are always confidential and a friendly space offering support as well a a bit of humor.
- Nov 10, 2022, 1:00 PM ESTwebinarThis webinar on Understanding Long-Term Disability Insurance will provide information on making a long-term disability insurance claim. We will discuss steps that employees can take while still working but considering taking time off, tips for submitting a long-term disability claim, how short-term
- Sep 26, 2022, 6:00 PM – 7:00 PM EDTOnline EventBefore we can care for others, we must love ourselves wholeheartedly. Breathwork, gentle movements, and restorative poses melt away all distractions so you have the time to discover what brings you pleasure in your yoga practice. Learn to adore all your quirks and facets!
- Sep 19, 2022, 6:00 PM – 7:00 PMOnline EventStorytelling is one of the cornerstones of how we make sense of our experiences and integrate them into our identity. Art therapy is a highly effective tool that gently engages you in the process of telling the story of your breast cancer experience. Join us!
- Sep 12, 2022, 6:00 PM – 7:30 PM EDTOnline EventHow can we dial down the noise in our daily lives to listen to the story emerging within ourselves? In this interactive session, we will come together to reflect on the personal narratives that give shape and meaning to our lives and find community in the experiences we share.
- Multiple DatesDec 29, 2022, 7:00 PM – 8:00 PM ESTVirtualThis is your weekly breast cancer support group! It's a welcoming and inviting virtual space where you can come to meet others, ask questions, or just listen in. Our session are always confidential and a friendly space offering support as well a a bit of humor.
- Nov 10, 2022, 1:00 PM ESTwebinarThis webinar on Understanding Long-Term Disability Insurance will provide information on making a long-term disability insurance claim. We will discuss steps that employees can take while still working but considering taking time off, tips for submitting a long-term disability claim, how short-term
- Sep 26, 2022, 6:00 PM – 7:00 PM EDTOnline EventBefore we can care for others, we must love ourselves wholeheartedly. Breathwork, gentle movements, and restorative poses melt away all distractions so you have the time to discover what brings you pleasure in your yoga practice. Learn to adore all your quirks and facets!
- Sep 19, 2022, 6:00 PM – 7:00 PMOnline EventStorytelling is one of the cornerstones of how we make sense of our experiences and integrate them into our identity. Art therapy is a highly effective tool that gently engages you in the process of telling the story of your breast cancer experience. Join us!
- Sep 12, 2022, 6:00 PM – 7:30 PM EDTOnline EventHow can we dial down the noise in our daily lives to listen to the story emerging within ourselves? In this interactive session, we will come together to reflect on the personal narratives that give shape and meaning to our lives and find community in the experiences we share.
- Multiple DatesDec 29, 2022, 7:00 PM – 8:00 PM ESTVirtualThis is your weekly breast cancer support group! It's a welcoming and inviting virtual space where you can come to meet others, ask questions, or just listen in. Our session are always confidential and a friendly space offering support as well a a bit of humor.
- Nov 10, 2022, 1:00 PM ESTwebinarThis webinar on Understanding Long-Term Disability Insurance will provide information on making a long-term disability insurance claim. We will discuss steps that employees can take while still working but considering taking time off, tips for submitting a long-term disability claim, how short-term
- Sep 26, 2022, 6:00 PM – 7:00 PM EDTOnline EventBefore we can care for others, we must love ourselves wholeheartedly. Breathwork, gentle movements, and restorative poses melt away all distractions so you have the time to discover what brings you pleasure in your yoga practice. Learn to adore all your quirks and facets!
- Sep 19, 2022, 6:00 PM – 7:00 PMOnline EventStorytelling is one of the cornerstones of how we make sense of our experiences and integrate them into our identity. Art therapy is a highly effective tool that gently engages you in the process of telling the story of your breast cancer experience. Join us!
- Sep 12, 2022, 6:00 PM – 7:30 PM EDTOnline EventHow can we dial down the noise in our daily lives to listen to the story emerging within ourselves? In this interactive session, we will come together to reflect on the personal narratives that give shape and meaning to our lives and find community in the experiences we share.
- Multiple DatesDec 29, 2022, 7:00 PM – 8:00 PM ESTVirtualThis is your weekly breast cancer support group! It's a welcoming and inviting virtual space where you can come to meet others, ask questions, or just listen in. Our session are always confidential and a friendly space offering support as well a a bit of humor.
- Nov 10, 2022, 1:00 PM ESTwebinarThis webinar on Understanding Long-Term Disability Insurance will provide information on making a long-term disability insurance claim. We will discuss steps that employees can take while still working but considering taking time off, tips for submitting a long-term disability claim, how short-term
- Sep 26, 2022, 6:00 PM – 7:00 PM EDTOnline EventBefore we can care for others, we must love ourselves wholeheartedly. Breathwork, gentle movements, and restorative poses melt away all distractions so you have the time to discover what brings you pleasure in your yoga practice. Learn to adore all your quirks and facets!
- Sep 19, 2022, 6:00 PM – 7:00 PMOnline EventStorytelling is one of the cornerstones of how we make sense of our experiences and integrate them into our identity. Art therapy is a highly effective tool that gently engages you in the process of telling the story of your breast cancer experience. Join us!
- Sep 12, 2022, 6:00 PM – 7:30 PM EDTOnline EventHow can we dial down the noise in our daily lives to listen to the story emerging within ourselves? In this interactive session, we will come together to reflect on the personal narratives that give shape and meaning to our lives and find community in the experiences we share.
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